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Rank: Newbie
Groups: Registered
Joined: 2/28/2014
Posts: 6
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Hello,
I had no idea NRAS had a forum on their site, this looks great. I actually joined because I am attending the NRAS roadshow in March and now I wish I'd become a member sooner! My name is Sophie and I'm 25 years old. I am a few months away from finishing my social work degree and I've started the scary process of looking for a job. I was diagnosed with RA in October 2009, which was a few months after the sudden onset of my symptoms
I've tried most of the DMARDs but my RA raged on and despite having seronegative RA, it appears to have been quite aggressive and left me with irreversible joint damage. I started my first anti TNF (cimzia) in August. It's worked miracles with my RA - put it in remission - but I've had horrendous side effects and it is now being discontinued which is very upsetting. I see my rheum in a few weeks and hopefully we can look at trying something else. I hope she won't suggest steroids because they turn me into a ravenous, angry, depressed insomniac!
I'm looking forward to meeting new people. It would be really good to chat to people around my age too.
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Rank: Advanced Member  Groups: Registered
Joined: 3/29/2013 Posts: 106 Location: Surrey
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Hello Sophie & welcome to the site  There is a great wealth of knowledge and support here so your be looked after well  I'm Louise, 40 with 2 children aged 9 and 7. I was diagnosed a year ago with RA and have been on an aggressive path of treatment. I'm currently in clinical remission but my medication and steroids are very high and about to be reduced so we will see how I react. Louise.
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Rank: Advanced Member  Groups: Registered
Joined: 4/24/2013 Posts: 703 Location: Hexham
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Welcome to the forum Sophie. This is a good place to find advice, have a rant, or a laugh. All sorts on here of all ages. Please keep posting to let us know how you are getting on Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012)
Ulcerative Colitis (1990)
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Rank: Advanced Member  Groups: Registered
Joined: 10/20/2012 Posts: 304 Location: Cheshire
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Hello Sophie and welcome. Sounds like you've had your fair share of ups and downs already - and such a tender age! Good luck with your studies and your job hunting. I smiled when I read your account of steroid effects - I've had exactly the same problem with that drug, although I'm still on it as my RA is not yet controlled. Anyway great to get to know you - keep posting. Gogs 
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Rank: Newbie
Groups: Registered
Joined: 2/26/2014
Posts: 8
Location: Essex
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Hi Sophie - welcome to the forum! I have only just joined but all these people seem so friendly and helpful.
Maggie
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Hi Sophie, and a warm welcome to the forum. It's a real shame you're having to stop the Cimzia when it's worked well for you. I hope they can come up with an alternative drug for you - there seem to be more out there now. I was diagnosed over 8 years ago, and my RA was rampant too, putting me in a wheelchair until I was prescribed Humira, which made a considerable difference to my quality of life. Hope to see you posting again, Kathleen x
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Rank: Advanced Member  Groups: Registered
Joined: 3/8/2013 Posts: 144 Location: Dumfries
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Hi Sophie
Welcome to the forum but sorry for your diagnosis.
I am 41 with 2 boys of 8 and 10.
I was diagnosed a year ago and it's a lot to take on board.
Good luck with your degree and job hunting. I completely agree with you on the steroid front and bloody hated taking them.
Please keep in touch and let us know how you get on at your appt.
Take care.
Lisa
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Rank: Advanced Member  Groups: Registered
Joined: 9/15/2013 Posts: 125
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Hi Sophie and welcome! As has been said there is a wide range in age groups here with the one horrible thing in common  I always think it is terrible that RA is no respecter of age and it's such a shame that you have been diagnosed so young. Hopefully you will find a treatment that suits you without side effects, soon. Wishing you every success with your job hunt and look forward to hearing more from you soon Julie x
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Rank: Advanced Member  Groups: Registered
Joined: 10/25/2013 Posts: 83 Location: warwick
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welcome fro me too , this forum is great , so much support. I hate my steroids with a passion too , I heard someone call them the devil's tic-tacs , how true !! which roadshow are you going to ? x
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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hi Sophie,
welcome from me.
what a shame you had to stop Cimzia, but there are so many more choices of drugs now available than years ago. i am on an Anti-TFN.
good luck with finishing your degree, it's a hard world out there for young people nowadays job wise i know, but am sure your degree will open more doors for you.
i have never taken steroids fortunately, but know well the side affects by other members here.
keep posting and let us know how you are getting on,
Suzanne
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Rank: Newbie
Groups: Registered
Joined: 2/28/2014
Posts: 6
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julie_warwick wrote:welcome fro me too , this forum is great , so much support. I hate my steroids with a passion too , I heard someone call them the devil's tic-tacs , how true !! which roadshow are you going to ? x I'm going to the one in Elstree on 12th March, are you going?
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Rank: Newbie
Groups: Registered
Joined: 2/28/2014
Posts: 6
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THANK YOU so much for the warm welcome! I look forward to getting to know you all.
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Rank: Advanced Member Groups: Registered
Joined: 10/25/2013 Posts: 83 Location: warwick
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no , I'm going to the one in Leamington - spa , anyone else going ? I don't know if anyone on here is anywhere near me ?
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Rank: Advanced Member Groups: Registered
Joined: 9/15/2013 Posts: 125
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Hi Julie so is your surname Warwick and you live in Warwick?? keep looking up to find the sunshine Julie x
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Rank: Advanced Member Groups: Registered
Joined: 10/25/2013 Posts: 83 Location: warwick
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ha ha .. no.. just live in warwick !! the sun is up there today.. lovely. roll on spring x
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Rank: Advanced Member Groups: Registered
Joined: 4/24/2013 Posts: 703 Location: Hexham
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julie_warwick wrote:ha ha .. no.. just live in warwick !! We used to live just down the road from you, in Banbury, till we moved to Hexham to be near our grandchildren. Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012)
Ulcerative Colitis (1990)
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Rank: Advanced Member Groups: Registered
Joined: 10/25/2013 Posts: 83 Location: warwick
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small world Paul , I am originally from Coventry , but my family is from around the Banbury area , recently got into family history and there's lots of humble pig farmers and servants , no one rich as yet
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Rank: Advanced Member  Groups: Registered
Joined: 5/2/2012 Posts: 670 Location: where the sun always shines :o
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Hello Sophie, I'm 41 years old, I've had ra since 2007 Tried most meds, on anti tnf - enbrel......never in my wildest dreams would I think of shooting up in my days of nite clubbing & hangovers!!     The forum is a good font of experience/help/pick me up from other peeps with ra. I don't go on here as much because after work I'm shattered  I work in an office 5 days a week, and my fingers are like pigs sausages Welcome again! Jane Xxxx 
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